Survey Development

HealthActCHQ surveys are built on a hallmark principal that the patient/person - including young children and adolescents -
are the richest and most appropriate source for identifying concepts and areas for measurement.

The HACHQ scientific staff develops new condition-focused measures for research and pharmaceutical company use within observational studies and clinical trials. HACHQ has developed adult and pediatric measures, including surveys related to genetic disorders, enuresis, allergic rhinitis, and attention deficit hyperactivity disorder.

Initiatives Supporting Health Related Quality of Life PRO's and ObsRO Survey Development

Family Initiatives such the Patient Reported Outcomes Measurement Information System (PROMIS®) funded by the US National Institutes of Health and the Patient Reported Outcomes Measurement Systems (PROMS) endorsed by the European Agency for the Evaluation of Medicinal Products support the fundamental premise that the health-related quality of life and well-being of patients is a core co-primary endpoint in clinical trials, clinical care, and research.

HealthActCHQ's Approach to PRO Child-Centered & ObsRO Survey Development

Survey development is a complex and iterative process. HACHQ's mixed-method approach is comprised of three essential steps: